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| Make sure you are seeing a doctor, who is most knowledgeable in the field of Aniridia/Glaucoma. Make sure your child gets an ultrasound 2x a year until the child reaches 8 years old. Don't believe all of the horror stories that are told. Some of the research doesn't apply and it can be very upsetting. Make sure your child receives a battery of psychologicals from a competent psychologist who has experience with visually impaired and blind students. So that the school system can never blame a failing program on your child. Make sure your child receives all the necessary tools he or she might need to succeed. You must be a strong advocate for your child. Even with some sight make sure your child learns Braille. Always make sure at PPT meetings that you understand what's going on. Ask questions if you don't happen to understand! Also never sign anything to do with your child's education unless you totally understand. If need be always involve yourself with a child advocate that is knowledgeable with laws governing children with disabilities. Feel free to contact me if you have any questions in regard to your child's education with special needs. Don't ever show weakness at PPT meetings or a lack of understanding ask questions and if you are not happy with the answers you get look into finding an attorney that specializes in this type of law. |
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